My Neurologist Dr. Kazimiroff had been saying for years that my condition appeared to be almost exclusively upper motor neuron involvement. He was waiting to see if it progressed to lower motor neuron involvement, which means the muscles would start wasting away. After seven years of my muscles remaining strong, on June 8, 2016 he added to the original main diagnosis, Progressive Bulbar Palsy, the rare secondary diagnosis of Primary Lateral Sclerosis. We finally breathed a collective sigh of guarded optimism that my condition was not going to cross the divide into full-blown ALS. Here’s a page explaining the distinction between PLS and ALS. Note especially the sentences that I bolded for emphasis. And here is an excerpt from the NIH Motor Neuron Disease Fact Sheet for What Are the Symptoms of Primary Lateral Sclerosis (PLS)?
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